About the Draft Federal FHIR® Action Plan

Comment

Comments of the Connected Health Initiative

The Connected Health Initiative (CHI, www.connectedhi.org) appreciates the opportunity to provide feedback on ASTP's Draft Federal FHIR Action Plan. We appreciate ASTP's focus on adopting FHIR and promoting collaboration within the health IT community to advance health data interoperability, drive innovation, and improve health outcomes nationwide. We also recognize the need for ASTP’s leadership in developing and harmonizing interoperability standards across the health sector, which will requires a holistic approach that extends beyond FHIR alone.

In response to ASTP's request for recommendations on additional specifications to include in the component tables, CHI encourages the inclusion of syntactic and semantic standards that are crucial to unlocking FHIR’s full potential. For the final draft, CHI suggests ASTP identify related standards including X12 and NCPDP, and provide clarity on their roles within the implementation guides for each component table. As an example, the X12 standard serves an important role in enabling critical electronic data interchange transactions like claims and payment processing, which are essential for streamlined administrative operations and HIPAA compliance.

CHI also includes its comments previously provided to ASTP on its HTI-2 proposed rule to supplement this input.

CHI Comment re ONC HTI-2 (4 Oct 2024).pdf

AMA FHIR Action Plan Comments

The AMA values the opportunity to provide feedback on ASTP/ONC’s Draft Federal FHIR Action Plan. We support the emphasis on adopting FHIR and fostering collaboration within the health IT community to enhance health data interoperability, drive innovative applications, and improve health outcomes across the nation.

 

We also acknowledge ASTP/ONC’s role in leading the development and harmonization of interoperability standards across health and human services. Achieving successful harmonization requires a comprehensive approach that goes beyond FHIR alone.

 

As noted, ASTP/ONC invites recommendations for additional specifications to include in the component tables. We encourage ASTP/ONC to consider incorporating complementary syntactic and semantic standards essential for realizing FHIR's full potential. For the final draft, the AMA recommends that ASTP/ONC specify related standards—such as X12 and NCPDP—and clarify their roles within the implementation guides for each component table. For example, the X12 standard remains vital in the U.S. health care system because it facilitates essential electronic data interchange transactions, such as claims and payment processing, which are critical for efficient administrative operations and compliance with HIPAA regulations.

 

The AMA is also providing our HTI-2 comment letter which offers more detailed insights into specific HL7/FHIR implementation guides mentioned in the draft plan's component tables.

2024-9-25 Letter to Tripathi re ONC HTI v2.pdf

NCQA Comments on Draft Federal FHIR® Action Plan

Please see attached for our comments. Thank you.

FHIR Action Plan_NCQA Response.pdf

Comment from the Massachusetts Health Data Consortium (MHDC)

Attached please find our comment on the draft Federal FHIR Action Plan. We appreciate the opportunity to help FHIR recommendations for HHS and the wider industry.

ASTP-FHIRActionPlan-Final.pdf

APHL Informatics Comments on Draft FHIR Action Plan

We are writing on behalf of the Association of Public Health Laboratories (APHL), an organization that works to strengthen laboratory systems serving the public’s health in the US and globally. APHL member laboratories - state and local governmental laboratories in the US - protect the public’s health by monitoring and detecting infectious and foodborne diseases; environmental contaminants; biological, chemical, and radiological agents; genetic disorders in newborns; and other diverse health threats. 

APHL appreciates the opportunity to submit feedback on the Draft FHIR Action Plan.

General feedback: the UI of the ONC FHIR Draft Action Plan is cumbersome. The ONC FHIR Draft Action Plan relies on many external links, an approach which may confuse the end user as to the scope of what is covered by its guidance.

Identifying the Core Components based on US Core is on target and a good approach, but it neglects the fact that US Core elements apply to EHR-S and do not necessarily cover all the other data producing systems for all use cases that need to be supported by federal agencies. In addition, the approach for inclusion in USCDI generalizes several data elements into categories that are not reflective of data modeling in those systems, and more documentation is needed to properly define each of the data elements so they can be reused without fear of misinterpretation. Of note is that US Core elements called out in regulation are usually 3 years or so behind the latest US Core version reflecting the last published version of USCDI.

Note that eCR data exchange is highly reliant on an intermediary, the eCR FHIR App on the APHL AIMS Platform. This app converts incoming eCR from healthcare organizations to CDA, and that is the format that is currently received and ingested by most public health agencies. As APHL recently recommended in our comments on HTI-2, ONC should clarify that the use of intermediaries like AIMS is an important component of public health reporting and is an acceptable way to meet requirements.

APHL recommends that ONC not list the Cancer Pathology Reporting IG as ready to use at this time. This IG is not mature enough for production. Currently, public health must combine data received from the Central Cancer Registry Report and the Cancer Pathology Report (which are defined by two separate IGs) in order to form a complete cancer case. The HL7 FHIR Cancer Registry Reporting Workgroup are working with eCR leads at CDC to implement cancer reporting of the cancer registry incidence report, then use eRSD and RCKMS to support the time interval reporting of additional information on the case. It may be prudent to wait for these changes to be implemented before identifying the IG to use in this scenario.

Many eCR exchanges with public health currently involve (and will continue to leverage) CDA-to-FHIR and/or FHIR-to-CDA transformations. These transformations are critical to enabling PHAs to pursue FHIR readiness without disrupting existing dataflows. Many of the resources, tools, and capabilities that are being developed by APHL and others are in support of these transformations and are aimed at allowing the PHA to use eCR content.

  • APHL recommends that ONC encourage trading partners to implement eCR Implementation Guide Version 2.1.2. While the draft FHIR Action Plan identifies V.2.1.0 as “most ready for adoption in certified health IT,” it is APHL’s experience that few trading partners are using 2.1.0 currently, so new implementations should focus on the latest implementation guide.

Under Early-stage Capabilities, APHL suggests modifying the following statement to apply more broadly: “The response to COVID-19 has demonstrated the need to make data available and able to be exchanged efficiently across the healthcare system.” should read “The response to COVID-19 as well as other public health emergencies such as Mpox has demonstrated the need to make data available and able to be exchanged efficiently across the healthcare system.”

Thank you again for the opportunity to comment on HTI-2. If you have any questions, please do not hesitate to let us know.

Melanie Kourbage (she/her)

Lead Specialist, Informatics

P +1 240.638.2056 | M +1 413.387.7032

melanie.kourbage@aphl.org | www.aphl.org

 

APHL Informatics Comments on Draft FHIR Action Plan

We are writing on behalf of the Association of Public Health Laboratories (APHL), an organization that works to strengthen laboratory systems serving the public’s health in the US and globally. APHL member laboratories - state and local governmental laboratories in the US - protect the public’s health by monitoring and detecting infectious and foodborne diseases; environmental contaminants; biological, chemical, and radiological agents; genetic disorders in newborns; and other diverse health threats. 

APHL appreciates the opportunity to submit feedback on the Draft FHIR Action Plan.

  • General feedback: the UI of the ONC FHIR Draft Action Plan is cumbersome. The ONC FHIR Draft Action Plan relies on many external links, an approach which may confuse the end user as to the scope of what is covered by its guidance.
  • Identifying the Core Components based on US Core is on target and a good approach, but it neglects the fact that US Core elements apply to EHR-S and do not necessarily cover all the other data producing systems for all use cases that need to be supported by federal agencies. In addition, the approach for inclusion in USCDI generalizes several data elements into categories that are not reflective of data modeling in those systems, and more documentation is needed to properly define each of the data elements so they can be reused without fear of misinterpretation. Of note is that US Core elements called out in regulation are usually 3 years or so behind the latest US Core version reflecting the last published version of USCDI.
  • Note that eCR data exchange is highly reliant on an intermediary, the eCR FHIR App on the APHL AIMS Platform. This app converts incoming eCR from healthcare organizations to CDA, and that is the format that is currently received and ingested by most public health agencies. As APHL recently recommended in our comments on HTI-2, ONC should clarify that the use of intermediaries like AIMS is an important component of public health reporting and is an acceptable way to meet requirements.
  • APHL recommends that ONC not list the Cancer Pathology Reporting IG as ready to use at this time. This IG is not mature enough for production. Currently, public health must combine data received from the Central Cancer Registry Report and the Cancer Pathology Report (which are defined by two separate IGs) in order to form a complete cancer case. The HL7 FHIR Cancer Registry Reporting Workgroup are working with eCR leads at CDC to implement cancer reporting of the cancer registry incidence report, then use eRSD and RCKMS to support the time interval reporting of additional information on the case. It may be prudent to wait for these changes to be implemented before identifying the IG to use in this scenario.
  • Many eCR exchanges with public health currently involve (and will continue to leverage) CDA-to-FHIR and/or FHIR-to-CDA transformations. These transformations are critical to enabling PHAs to pursue FHIR readiness without disrupting existing dataflows. Many of the resources, tools, and capabilities that are being developed by APHL and others are in support of these transformations and are aimed at allowing the PHA to use eCR content.
  • APHL recommends that ONC encourage trading partners to implement eCR Implementation Guide Version 2.1.2. While the draft FHIR Action Plan identifies V.2.1.0 as “most ready for adoption in certified health IT,” it is APHL’s experience that few trading partners are using 2.1.0 currently, so new implementations should focus on the latest implementation guide.
  • Under Early-stage Capabilities, APHL suggests modifying the following statement to apply more broadly: “The response to COVID-19 has demonstrated the need to make data available and able to be exchanged efficiently across the healthcare system.” should read “The response to COVID-19 as well as other public health emergencies such as Mpox has demonstrated the need to make data available and able to be exchanged efficiently across the healthcare system.”

Thank you again for the opportunity to comment on HTI-2. If you have any questions, please do not hesitate to let us know.

Melanie Kourbage (she/her)

Lead Specialist, Informatics

P +1 240.638.2056 | M +1 413.387.7032

melanie.kourbage@aphl.org | www.aphl.org

 

Comments & Recommendations

 

25 November 2024

Micky Tripathi, PhD, MPP

National Coordinator for Health Information Technology, Acting Chief Artificial Intelligence Officer Assistant Secretary for Technology Policy (ASTP)/Office of the National Coordinator for Health Information Technology (ONC)

Department of Health and Human Services

Hubert Humphrey Building, Suite 729 200 Independence Avenue SW Washington, DC 20201

Avinash Shanbhag

Associate Deputy Assistant Secretary

Assistant Secretary for Technology Policy/Office of the National Coordinator for Health IT(ASTP/ONC)

Washington, District of Columbia, United States

Adam Wong

Senior Innovation Analyst at U.S. Department of Health and Human Services

Washington, District of Columbia, United States

Submission Channel

Submitted electronically: Health IT Interoperability Standards Platform (https://www.healthit.gov/isp/user/login)

RE: About the Draft Federal FHIR® Action Plan

Submission Details

Thank you for the opportunity to review the 2024 Draft Federal FHIR® Action Plan. We appreciate the ongoing efforts to advance interoperability and standardization across health care. After multiple discussions and consulting with numerous colleagues in informatics and health IT, we would like to surface the following key considerations:

Enhanced Attention to Stakeholders Represented within FHIR: For FHIR to fully mature, it is essential to address gaps in concept representation for many major healthcare stakeholders who are marginalized or overlooked. Example stakeholders include blood bank inventory and donor management systems, organ transplant and donor management systems, implanted device management systems, laboratory information systems, infusion medication systems. 

Concepts and core healthcare data constructs for these major stakeholders and others are either insufficiently or not at all represented within the FHIR standard. This poses challenges to creating a comprehensive, universally applicable interoperability framework.

Integration of Existing Data Exchange Standards and Standard Terminologies: HL7 data exchange standards, along with established standard terminologies, have been utilized for decades. It is crucial to require bi- directional use of major terminology standards at both the structural and vocabulary levels, via appropriate and necessary transformations, to ensure complete, consistent lossless data representation and interpretability when information is exchanged between systems. This requirement will help maintain the integrity and usability of historical data, facilitate a smooth transition to FHIR-based frameworks, and ensure clean, robust data representation for true interoperability.

https://confluence.hl7.org/display/CGP/C-CDA+to+FHIR+and+from+US+Core+Mapping

https://build.fhir.org/ig/HL7/ccda-on-fhir/

We encourage ASTP/ONC to address these areas as a priority in the Action Plan to ensure FHIR evolves as an inclusive and robust standard, capable of meeting the dynamic needs of the healthcare ecosystem. 

Thank you for your attention. 

Sincerely, 

Natalee Agassi, MD, PharmD,

Title as of Dec. 2, 2024, Director Oracle Terminologies and Ontologies, Oracle Health, and Artificial Intelligence

Catherine K. Craven, PhD, MA, MLS, FAMIA,

Biomedical Informatician and Consultant 

Health Level Seven Draft Federal FHIR Action Plan Comments

Attached are HL7 International's Draft Federal FHIR Action Plan comments.  Thank you for the opportunity to comment! 

HL7 Draft FHIR Action Plan Letter 11.25.24 FINAL.pdf