Kidney Donor and Transplant Data Standards and Interoperability: Current State and Opportunities

Join HHS, the American Society of Nephrology, and leaders from across the kidney care community for the second in a three-part series exploring opportunities to improve health data interoperability across the kidney patient journey.

This interactive session will take a deeper look at the unique data challenges surrounding kidney donation and transplantation. Patients, clinicians, transplant programs, organ procurement organizations, laboratories, federal partners, and other stakeholders will explore how data moves across the donor and transplant journey today, where critical gaps remain, and where improved standards and interoperability could make the greatest difference.

What We’ll Cover

• The donor and transplant journey: How data needs change from referral and evaluation through donation, transplantation, and follow-up
• From the front lines: Real-world perspectives from patients, transplant professionals, organ procurement organizations, and other key stakeholders
• Where are the gaps? Identifying information that is difficult to access or exchange across organizations and systems
• Existing efforts: Exploring current standards and initiatives addressing donor and transplant data exchange and where they fall short
• From challenges to action: Interactive discussion to identify high-priority opportunities for improving donor and transplant interoperability

Be part of the conversation. Your experience and perspective can help identify the donor and transplant data challenges that matter most and inform priorities for a more connected kidney health ecosystem.