Managing My Personal Health Record: My Story of Living with Lupus
Tracy Okubo | May 13, 2013
When I was 15 years old I was diagnosed with Systemic Lupus Erthamatosis (Lupus). My parents and I didn’t really know or understand what Lupus was, but we knew that people died from it and that I needed to be extremely careful with my health. I remember how scared I was, along with being in extreme pain, barely able to walk. In addition I was puffy and losing my hair as a side effect of my medications.
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