Health Information Exchange Top Three Themes from ONC’s Electronic Health Information Sharing Workshop
Amanda Woodhead | October 5, 2022
ONC recently held a health care provider-focused workshop and guided discussion on opportunities and challenges related to sharing electronic health information (EHI). More than 200 people involved with utilizing health information technology (health IT) to share EHI participated in the half-day workshop. They also provided perspectives on October 6, 2022, when the definition of “information blocking” no longer limits its focus to the subset of EHI represented by data elements in the United States Core Data for Interoperability version 1 (USCDI v1).
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Information Blocking Information Blocking: Eight Regulatory Reminders for October 6th
Steven Posnack | September 30, 2022
On October 6, 2022, we reach the end of the more than two-year glide path laid out for the information blocking regulations. Moving forward, expect to see periodic, experience-driven regulatory updates as well as continued work on education, outreach, and oversight, including the establishment of disincentives for health care providers. There may also be the possibility of information blocking advisory opinions if Congress grants the Secretary such authority.
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Health Data Improving Data Infrastructure for Intellectual and Developmental Disabilities
Brenda Akinnagbe | September 26, 2022
July 26, 2022, marked the 32nd anniversary of the Americans with Disabilities Act (ADA). In celebration of this landmark civil rights law, the Office of the Assistant Secretary for Planning and Evaluation (ASPE) published a report called Improving Data Infrastructure for Patient-Centered Outcomes Research for People with Intellectual and Developmental Disabilities (IDD).
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Health Data Accelerating Patient-Centered Outcomes Research through Synthetic Health Data Generation
Stephanie Garcia | September 19, 2022
Real world health data are critical for Patient-Centered Outcomes Research (PCOR). However, it’s often difficult, expensive, and time consuming for researchers to access real-world clinical health data because of privacy concerns, security restrictions, and usage issues. Although PCOR researchers, health information technology developers, and informaticists often depend on anonymized or de-identified clinical health data for testing theories, data models, algorithms, and prototype innovations, re-identification of anonymized data remains a possible security risk. Synthetic health data can provide a no-risk data source to complement research and support testing needs until real clinical health data are available.
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ASTP Events, Interoperability, Public Health ONC and CDC Working Together to Strengthen Public Health Systems, Tools, and Practices that Keep Us Safe
Ryan Argentieri | September 8, 2022
Since the beginning of the COVID-19 pandemic, public health staff have worked tirelessly to make sense of the extraordinary volumes of data coming at them at different times and in different ways. Because much of this information is unstructured or non-standardized, epidemiologists, scientists, and others must first bring these data into alignment before the real work can begin. The more differences there are in the data, the more painstaking the is work for people on the frontlines trying to put the pieces together fast.
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