The increasing availability of electronic health data in the 21st century has tremendous potential to ignite a new era of inquiry and discovery. ONC is part of the Precision Medicine Initiative (PMI), a federal effort to spur the next generation of health research by rethinking access, aggregation, storage, and analysis of many kinds of health and health-related data. With precision medicine, researchers will be able to make new discoveries about health and illness to bring a more personalized approach to patient care.

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Earlier this year, the Office of National Coordinator for Health Information Technology (ONC), in partnership with National Institutes of Health (NIH), announced the Sync for Genes pilots – an effort to strengthen genomic data sharing that is part of the Precision Medicine Initiative.  As a result of this effort, a set of genomics specifications have been refined as part of the Health Level 7 (HL7®) Fast Healthcare Interoperability Resource (FHIR®) standard,

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The Precision Medicine Initiative (PMI) will usher in an era of individualized health care. PMI will advance the nation’s ability to accelerate scientific discovery and improve clinical care through an innovative approach that takes into account individual differences in people’s genes, environments, and lifestyles. Put simply, PMI will enable us to better predict which treatments will be most effective for which patients – and health information technology (health IT) is foundational to achieving its promise.

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S4S pilots are coming!
On February 25, 2016, the National Institutes of Health (NIH), in collaboration with the Office of the National Coordinator for Health IT (ONC), announced the launch of Sync for Science (S4S), a pilot to allow individuals to access their health data and send it to researchers in support of the goals of the Precision Medicine Initiative (PMI). Individual data donation will be a key component of the PMI Cohort Program,

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