Consumer Engagement

Portrait of Dr. Karen B. DeSalvo

Empowering Patients: New Videos to Promote Access to Electronic Health Information

Dr. Karen B. DeSalvo | June 2, 2016

The Office for Civil Rights (OCR) released a HIPAA fact sheet earlier this year reinforcing patients’ right to access their health information and clarifying, among other things, that patients may be charged only limited fees for copies of their health information.  Many people are not fully aware of their right to access their own medical records under the Health Insurance Portability and Accountability Act (HIPAA), including the right to access an electronic copy when their health information is stored electronically.

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Portrait of Dr. Karen B. DeSalvo

When and Where You Need It Most: Your Rights to Access and Transmit Your Health Information

Dr. Karen B. DeSalvo | January 11, 2016

In order to effectively manage their health, individuals need to be able to access and use their health information when, where, and how they want, including sending it to the people and tools helping them become or stay healthy – neighbors, friends, relatives, health care providers who are treating or consulting with the individual, or even third-party software tools used for self-management. The Health Insurance Portability and Accountability Act of 1996 (HIPAA) governs the privacy of individuals’ protected health information (PHI) and when and how that information can be shared.

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Portrait of Dr. Karen B. DeSalvo

Harnessing Consumer Engagement for Better Health, Better Care and Lower Cost

Dr. Karen B. DeSalvo | October 1, 2015

Today, ONC joins hundreds of providers, consumers, entrepreneurs, policy makers, and federal and private sector partners to celebrate advancements in consumer engagement through health IT at its premier consumer event: the Fifth Annual Consumer Health IT Summit (#consumersummit15). We have a lot of success to celebrate, a lot of exciting developments to share with one another, and yes, -a lot of work still to do.

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Portrait of Michael Wittie

The Digital Consumer: How Patient Generated Health Data and Health IT Can Help Improve Care

Michael Wittie | January 6, 2015

Data rests at the heart of health IT’s capacity to help improve care quality and health outcomes: standards-based, interoperable electronic systems make it possible to access, share, use and re-use information that was once locked in paper charts kept by individual providers. As more and more consumers engage and adopt mobile health technologies to help them better track their daily health and wellbeing, it will be increasingly important to consider how those data can flow seamlessly from consumers to providers – and back – to help everyone achieve better health.

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