Electronic health record (EHR) systems store incredibly rich data about individual patients, but historically, individuals have been unable to access this information easily and share it for research. However, use of patients’ data could accelerate scientific discovery and progress toward precision medicine. Permitting patients to connect and share their data with researchers—while maintaining the security and privacy of those data—is just one of the many benefits to the research community of the ONC‘s Cures Act Final Rule released in March 2020.

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S4S pilots are coming!
On February 25, 2016, the National Institutes of Health (NIH), in collaboration with the Office of the National Coordinator for Health IT (ONC), announced the launch of Sync for Science (S4S), a pilot to allow individuals to access their health data and send it to researchers in support of the goals of the Precision Medicine Initiative (PMI). Individual data donation will be a key component of the PMI Cohort Program,

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