We\u2019ve posted a video<\/a> that lets you experience how this program is helping one mother whose daughter suffers from Sickle Cell Disease. This patient lives outside the Dallas area in Tyler, Texas and uses her PHR to expedite and enhance the precision of care her daughter receives in clinical encounters, especially emergency room visits that can be stressful and emotional.<\/p>\n\n\n\nChildren\u2019s Chief Information Officer, Pamela Arora, and Information Management and Exchange Director, Katherine Lusk, have spearheaded the effort that allows caregivers for these chronically ill children to access their medical records on demand using HealthVault and iPhones donated by Verizon. Recognized as the next frontier in health transformation, this effort to empower patients to own and control their personal health data allows for more rapid access to data from multiple providers and institutions in one place, typically available on mobile devices with Internet connectivity.<\/p>\n\n\n\n
Understanding patient and caregiver engagement has been critical to the success of this incredible work. With the guidance of a designated Children\u2019s PHR expert, patients and caregivers are taught how to use HealthVault and access \u2013 and use \u2013 their data. Monitoring of use and patient satisfaction are helping to refine and improve the process.<\/p>\n\n\n\n
The Children\u2019s experience is revolutionary for these kids and while there were challenges, they were not insurmountable. We think you will agree that this mother\u2019s account makes the effort worthwhile, improving her daughter\u2019s care and her peace of mind.<\/p>\n\n\n\n
We have to give a special shout out to Pamela and Katherine for never giving up\u2026they are truly making a difference<\/i>.<\/p>\n","protected":false},"excerpt":{"rendered":"
Children\u2019s Medical Center Dallas is among the first hospitals in the U.S. to implement true, […]<\/p>\n","protected":false},"author":619,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_selected_menu":"","_show_breadcrumbs":"true","_blog_show_featured_image":false,"footnotes":""},"categories":[1],"archived-category":[713],"featured":[],"topics":[408,412,443,449],"class_list":["post-5665","post","type-post","status-publish","format-standard","hentry","category-insights-updates","archived-category-state-hie","topics-care-continuum","topics-maternal-pediatric-care","topics-patient-access-health-records","topics-resources"],"acf":{"blog_authors":[{"blog_author_profiles":"198501"}],"hp_news_hide":false},"yoast_head":"\n
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