Data used to categorize individuals for identification, records matching, and other purposes.

Data Element

Applicable Vocabulary Standard(s)
First Name

Last Name

Middle Name (including middle initial)

Suffix

Previous Name

Date of Birth

Race

Both standards are required

  • The Office of Management and Budget Standards for Maintaining, Collecting, and Presenting Federal Data on Race and Ethnicity, Statistical Policy Directive No. 15, as revised, October 30, 1997
  • CDC Race and Ethnicity Code Set Version 1.0 (March 2000)

Adopted at 45 CFR 170.207(f)
Ethnicity

Both standards are required

  • The Office of Management and Budget Standards for Maintaining, Collecting, and Presenting Federal Data on Race and Ethnicity, Statistical Policy Directive No. 15, as revised, October 30, 1997
  • CDC Race and Ethnicity Code Set Version 1.0 (March 2000)

Adopted at 45 CFR 170.207(f)
Birth Sex

Birth sex must be coded in accordance with HL7 Version 3 (V3) Standard, Value Sets for AdministrativeGender and NullFlavor attributed as follows:

  • Female. F
  • Male. M
  • Unknown. nullFlavor UNK

Adopted at 45 CFR 170.207(n) 
Preferred Language

Request for Comment (RFC) 5646, “Tags for Identifying Languages”, September 2009

Adopted at 45 CFR 170.207(g)
Current Address

Includes street name, number, city/town, state, and zip code.
Previous Address

Includes street name, number, city/town, state, and zip code.
Phone Number

Both standards are required

  • ITU-T E.123, Series E: Overall Network Operation, Telephone Service, Service Operation and Human Factors, International operation - General provisions concerning users: Notation for national and international telephone numbers, email addresses and web addresses, February 2001
  • ITU-T E.164, Series E: Overall Network Operation, Telephone Service, Service Operation and Human Factors, International operation - Numbering plan of the international telephone service, The international public telecommunication numbering plan, November 2010

Adopted at 45 CFR 170.207(q)(1)
Phone Number Type

Email Address

Data Element

Applicable Vocabulary Standard(s)
First Name

Last Name

Middle Name (including middle initial)

Suffix

Previous Name

Date of Birth

Race

Both standards are required

  • The Office of Management and Budget Standards for Maintaining, Collecting, and Presenting Federal Data on Race and Ethnicity, Statistical Policy Directive No. 15, as revised, October 30, 1997
  • CDC Race and Ethnicity Code Set Version 1.0 (March 2000)

Adopted at 45 CFR 170.207(f)
Ethnicity

Both standards are required

  • The Office of Management and Budget Standards for Maintaining, Collecting, and Presenting Federal Data on Race and Ethnicity, Statistical Policy Directive No. 15, as revised, October 30, 1997
  • CDC Race and Ethnicity Code Set Version 1.0 (March 2000)

Adopted at 45 CFR 170.207(f)
Sex (Assigned at Birth)

Birth sex must be coded in accordance with HL7 Version 3 (V3) Standard, Value Sets for AdministrativeGender and NullFlavor attributed as follows:

  • Female. F
  • Male. M
  • Unknown. nullFlavor UNK

Adopted at 45 CFR 170.207(n) 
Sexual Orientation

A person’s identification of their emotional, romantic, sexual, or affectional attraction to another person

Sexual orientation must be coded in accordance with SNOMED CT® and HL7 Version 3 Standard, Value Sets for AdministrativeGender and NullFlavor, attributed as follows:

  • Lesbian, gay or homosexual. 38628009
  • Straight or heterosexual. 20430005
  • Bisexual. 42035005
  • Something else, please describe. nullFlavor OTH
  • Don't know. nullFlavor UNK
  • Choose not to disclose. nullFlavor ASKU

Adopted at 45 CFR 170.207(o)(1)
Gender Identity

A person’s internal sense of being a man, woman, both, or neither.

Gender Identify must be coded in accordance with SNOMED CT® and HL7 Version 3 Standard, Value Sets for AdministrativeGender and NullFlavor, attributed as follows:

  • Male. 446151000124109
  • Female. 446141000124107
  • Female-to-Male (FTM)/Transgender Male/Trans Man. 407377005
  • Male-to-Female (MTF)/Transgender Female/Trans Woman. 407376001
  • Genderqueer, neither exclusively male nor female. 446131000124102
  • Additional gender category or other, please specify. nullFlavor OTH
  • Choose not to disclose. nullFlavor ASKU

Adopted at 45 CFR 170.207(o)(2)
Preferred Language

Request for Comment (RFC) 5646, “Tags for Identifying Languages”, September 2009

Adopted at 45 CFR 170.207(g)
Current Address

Includes street name, number, city/town, state, and zip code.
Previous Address

Includes street name, number, city/town, state, and zip code.
Phone Number

Both standards are required

  • ITU-T E.123, Series E: Overall Network Operation, Telephone Service, Service Operation and Human Factors, International operation - General provisions concerning users: Notation for national and international telephone numbers, email addresses and web addresses, February 2001
  • ITU-T E.164, Series E: Overall Network Operation, Telephone Service, Service Operation and Human Factors, International operation - Numbering plan of the international telephone service, The international public telecommunication numbering plan, November 2010

Adopted at 45 CFR 170.207(q)(1)
Phone Number Type

Email Address

Data Element

Applicable Vocabulary Standard(s)
First Name

Last Name

Middle Name (including middle initial)

Name Suffix

Name component following family name that may be used to describe a person's position in a family.
Previous Name

Date of Birth

Known or estimated year, month, and day of the patient's birth.
Date of Death

Known or estimated year, month, and day of the patient's death.
Race

Both standards are required

  • The Office of Management and Budget Standards for Maintaining, Collecting, and Presenting Federal Data on Race and Ethnicity, Statistical Policy Directive No. 15, as revised, October 30, 1997
  • CDC Race and Ethnicity Code Set Version 1.2 (July 2021)
Ethnicity

Both standards are required

  • The Office of Management and Budget Standards for Maintaining, Collecting, and Presenting Federal Data on Race and Ethnicity, Statistical Policy Directive No. 15, as revised, October 30, 1997
  • CDC Race and Ethnicity Code Set Version 1.2 (July 2021)
Tribal Affiliation

Tribe or band with which an individual associates.
Sex

Documentation of a specific instance of sex and/or gender information.
  • SNOMED International, Systematized Nomenclature of Medicine Clinical Terms (SNOMED CT®) U.S. Edition, March 2022 Release
Sexual Orientation

A person’s identification of their emotional, romantic, sexual, or affectional attraction to another person
  • SNOMED International, Systematized Nomenclature of Medicine Clinical Terms (SNOMED CT®) U.S. Edition, March 2022 Release
Gender Identity

A person’s internal sense of being a man, woman, both, or neither.
  • Systematized Nomenclature of Medicine Clinical Terms (SNOMED CT®) U.S. Edition, March 2022 Release
Preferred Language

  • IETF (Internet Engineering Task Force) Request for Comment (RFC) 5646, “Tags for
    Identifying Languages”, September 2009

Adopted at 45 CFR 170.207(g)(2)
Current Address

Place where a person is located or may be contacted
  • Project US@ Technical Specification for Patient Addresses, Final Version 1.0
Previous Address

Prior place where a person may have been located or could have been contacted.
  • Project US@ Technical Specification for Patient Addresses, Final Version 1.0
Phone Number

Numbers and symbols to contact an individual when using a phone.

Both standards are required

  • ITU-T E.123, Series E: Overall Network Operation, Telephone Service, Service Operation and Human Factors, International operation - General provisions concerning users: Notation for national and international telephone numbers, email addresses and web addresses, February 2001
  • ITU-T E.164, Series E: Overall Network Operation, Telephone Service, Service Operation and Human Factors, International operation - Numbering plan of the international telephone service, The international public telecommunication numbering plan, November 2010

Adopted at 45 CFR 170.207(q)(1)
Phone Number Type

Contact point when using a phone (e.g., home, work, mobile).
Email Address

Unique identifier of an individual's email account that is used to send and receive email messages.
Related Person's Name

Name of a person with a legal or familial relationship to a patient.
Related Person's Relationship

Relationship of a person to a patient. (e.g., parent, next-of-kin, guardian, custodian)
Occupation

Type of work of a person. (e.g., infantry, business analyst, social worker)
  • Occupational Data for Health, version 20201030
Occupation Industry

Type of business that compensates for work or assigns work to an unpaid worker or volunteer. (e.g., U.S. Army, cement manufacturing, children and youth services)
  • Occupational Data for Health, version 20201030

Data Element

Applicable Vocabulary Standard(s)
First Name

Last Name

Middle Name (including middle initial)

Name Suffix

Name component following family name that may be used to describe a person's position in a family.
Previous Name

Date of Birth

Known or estimated year, month, and day of the patient's birth.
Date of Death

Known or estimated year, month, and day of the patient's death.
Race

Both standards are required

  • The Office of Management and Budget Standards for Maintaining, Collecting, and Presenting Federal Data on Race and Ethnicity, Statistical Policy Directive No. 15, as revised, October 30, 1997
  • CDC Race and Ethnicity Code Set Version 1.2 (July 2021)
Ethnicity

Both standards are required

  • The Office of Management and Budget Standards for Maintaining, Collecting, and Presenting Federal Data on Race and Ethnicity, Statistical Policy Directive No. 15, as revised, October 30, 1997
  • CDC Race and Ethnicity Code Set Version 1.2 (July 2021)
Tribal Affiliation

Tribe or band with which an individual associates.
Sex

Documentation of a specific instance of sex and/or gender information.
  • Systematized Nomenclature of Medicine Clinical Terms (SNOMED CT®) U.S. Edition, March 2023 Release
Sexual Orientation

A person’s emotional, romantic, sexual, or affectional attraction to another person.
  • Systematized Nomenclature of Medicine Clinical Terms (SNOMED CT®) U.S. Edition, March 2023 Release
Gender Identity

A person’s internal sense of being a man, woman, both, or neither.
  • Systematized Nomenclature of Medicine Clinical Terms (SNOMED CT®) U.S. Edition, March 2023 Release
Preferred Language

  • IETF (Internet Engineering Task Force) Request for Comment (RFC) 5646, “Tags for Identifying Languages”, September 2009

Adopted at 45 CFR 170.207(g)(2)
Current Address

Place where a person is located or may be contacted
  • Project US@ Technical Specification for Patient Addresses, Final Version 1.0
Previous Address

Prior place where a person may have been located or could have been contacted.
  • Project US@ Technical Specification for Patient Addresses, Final Version 1.0
Phone Number

Numbers and symbols to contact an individual when using a phone.

Both standards are required

  • ITU-T E.123, Series E: Overall Network Operation, Telephone Service, Service Operation and Human Factors, International operation - General provisions concerning users: Notation for national and international telephone numbers, email addresses and web addresses, February 2001
  • ITU-T E.164, Series E: Overall Network Operation, Telephone Service, Service Operation and Human Factors, International operation - Numbering plan of the international telephone service, The international public telecommunication numbering plan, November 2010

Adopted at 45 CFR 170.207(q)(1)
Phone Number Type

Contact point when using a phone.

Examples include but are not limited to home, work, and mobile.
Email Address

Unique identifier of an individual's email account that is used to send and receive email messages.
Related Person's Name

Name of a person with a legal or familial relationship to a patient.
Relationship Type

Relationship of a person to a patient.

Examples include but are not limited to parent, next-of-kin, guardian, and custodian.
Occupation

Type of work of a person.

Examples include but are not limited to infantry, business analyst, and social worker.
  • Occupational Data for Health, version 20201030
Occupation Industry

Type of business that compensates for work or assigns work to an unpaid worker or volunteer.

Examples include but are not limited to U.S. Army, cement manufacturing, and children and youth services.
  • Occupational Data for Health, version 20201030

Data Element

Applicable Vocabulary Standard(s)
First Name

Last Name

Middle Name (including middle initial)

Name Suffix

Name component following family name that may be used to describe a person's position in a family.
Previous Name

Name to Use

Name that should be used when addressing or referencing the patient.

Usage note: This information should be provided by the patient.

Example includes but is not limited to nickname.
Pronoun

Word or words that can replace a person’s name when addressing or referring to a person. 

Usage note: This information should be provided by the patient. 

Examples include but are not limited to she, her, they, them, he, his.
Date of Birth

Known or estimated year, month, and day of the patient's birth.
Date of Death

Known or estimated year, month, and day of the patient's death.
Race

Both standards are required

  • The Office of Management and Budget Standards for Maintaining, Collecting, and Presenting Federal Data on Race and Ethnicity, Statistical Policy Directive No. 15, as revised, October 30, 1997
  • CDC Race and Ethnicity Code Set Version 1.2 (July 2021)
Ethnicity

Both standards are required

  • The Office of Management and Budget Standards for Maintaining, Collecting, and Presenting Federal Data on Race and Ethnicity, Statistical Policy Directive No. 15, as revised, October 30, 1997
  • CDC Race and Ethnicity Code Set Version 1.2 (July 2021)
Tribal Affiliation

Tribe or band with which an individual associates.
Sex

Documentation of a specific instance of sex and/or gender information.
  • Systematized Nomenclature of Medicine Clinical Terms (SNOMED CT®) U.S. Edition, September 2023 Release
Sexual Orientation

A person’s emotional, romantic, sexual, or affectional attraction to another person.
  • Systematized Nomenclature of Medicine Clinical Terms (SNOMED CT®) U.S. Edition, September 2023 Release
Gender Identity

A person’s internal sense of being a man, woman, both, or neither.
  • Systematized Nomenclature of Medicine Clinical Terms (SNOMED CT®) U.S. Edition, September 2023 Release
Preferred Language

  • IETF (Internet Engineering Task Force) Request for Comment (RFC) 5646, “Tags for Identifying Languages”, September 2009

Adopted at 45 CFR 170.207(g)(2)
Interpreter Needed

Indication of whether a person needs language interpretation services.
  • Logical Observation Identifiers Names and Codes (LOINC) version 2.76
  • Systematized Nomenclature of Medicine Clinical Terms (SNOMED CT) U.S. Edition, September 2023 Release
Current Address

Place where a person is located or may be contacted.

Usage note: If the address pattern is not supported in the standard, implementations should align as closely as possible and avoid truncating any values. 
  • Project US@ Technical Specification for Patient Addresses, Final Version 1.0
Previous Address

Prior place where a person may have been located or could have been contacted.

Usage note: If the address pattern is not supported in the standard, implementations should align as closely as possible and avoid truncating any values. 
  • Project US@ Technical Specification for Patient Addresses, Final Version 1.0
Phone Number

Both standards are required

  • ITU-T E.123, Series E: Overall Network Operation, Telephone Service, Service Operation and Human Factors, International operation - General provisions concerning users: Notation for national and international telephone numbers, email addresses and web addresses, February 2001
  • ITU-T E.164, Series E: Overall Network Operation, Telephone Service, Service Operation and Human Factors, International operation - Numbering plan of the international telephone service, The international public telecommunication numbering plan, November 2010

Adopted at 45 CFR 170.207(q)(1)
Phone Number Type

Contact point when using a phone.

Examples include but are not limited to home, work, and mobile.
Email Address

Unique identifier of an individual's email account that is used to send and receive email messages.
Related Person's Name

Name of a person with a legal or familial relationship to a patient.
Relationship Type

Relationship of a person to a patient.

Examples include but are not limited to parent, next-of-kin, guardian, and custodian.
Occupation

Type of work of a person.

Examples include but are not limited to infantry, business analyst, and social worker.
  • Occupational Data for Health, version 20201030
Occupation Industry

Type of business that compensates for work or assigns work to an unpaid worker or volunteer.

Examples include but are not limited to U.S. Army, cement manufacturing, and children and youth services.
  • Occupational Data for Health, version 20201030

Comment

Submitted by jeffcoughlin on

Add Veteran Status to Patient Demographic Data Class

ONC should add Veteran Status as a data element to this data class.  Such a step would help with care coordination across VA's network and private sector providers.  In addition, such information would be helpful at the point of care as clinicians reference social determinants of health data, and ensure that veterans are availing themselves of all the benefits that they are owed given their service to our nation.  

For the past several years, the Department of Defense (DoD), Department of Veterans Affairs (VA), and ONC have collaborated to modernize our military and Veteran’s Electronic Health Record (EHR) system. Seamless integration of care and health data across DoD, VA, and the private sector is a key component of this effort. Information exchange is vital to improving the overall readiness for our military, while guaranteeing Service members and beneficiaries receive the quality care they deserve. In addition, ensuring alignment with nationally-recognized data standards, industry best practices, and continuity of care as our nation’s Service member’s transition to Veteran status is critical to the success of our nation’s DoD and VA’s EHR modernization efforts.  Moreover, appropriately leveraging USCDI makes certain this information is available and accessible for exchange and remains a key component of broader nationwide interoperability goals. 

The latest data maintains that nearly six out of 10 Veterans receive some portion of their health care from private sector providers, making Veterans a strong business case for broader interoperability. Adding Veteran Status to USCDI will ensure that more information is available to appropriately treat Veterans, and allow our health system to better coordinate their goals, care plans, and benefits across the continuum of care. 

Log in or register to post comments